Something To Think About

Last week my aunt sent a talk to me from a funeral she recently attended - this part made such a profound impact on me. I just wanted to share it . . .

We don't have life experiences so that we can simply endure them. We must endure them well so that those experiences do change us. That is the purpose of those experiences. If we don't change through them, then they are simply tragic. But if they do change us then they are what I like to call "difficult blessings." They are blessings that we would never wish for, that we would never wish upon anyone else. But if we are honest with ourselves we realize that the best attributes we have, our love, our compassion, our desire to serve, to do better, to be better couldn't have come about to the same degree without those experiences. And so, while we would gladly do away with the experience we would never trade what the experience has done to us. Unfortunately, we cannot have one without the other.

This is my experience I would NEVER trade. Even though it's difficult to be without Gavin, I still get to remember precious moments like this . . . and this HAS changed me.

A Mother's Day Escape

At the last moment we decided to go to the cabin for the weekend. Jason and I decided that being with family away from home would be much better than sitting at church for Mother's Day. We just didn't need to do that to ourselves this year. It just felt like too much to handle this time. So, we went with my parents and my brother Matt to the cabin this weekend and had a really great time. Here's a recap of the weekend. It all started with . . .

OUR FURRY INTRUDER

Friday night Jason and I were half way asleep when we heard my mom scream from her bedroom, "AHHHHH! THERE IS SOMETHING BIG IN MY BED! AND I THINK IT HAS FURRRRRRRRRR!" Jason claimed the manly responsibility of getting rid of "the big furry thing" in mom's bed. Luckily, we had watched an episode of Rob & Big on MTV that night where they find dead mice in their home so we new exactly how to handle the situation. :) So here is the scene: Mom is holding a big box over the bed ready to capture the creature, Jason's hands are wrapped in WalMart grocery bags and I am standing by the door ready to close them all in on a moments notice. Jason threw back the covers and this is what we found. . . . . . a dead chipmunk. We aren't quite sure how it got into mom and dad's bed, but we assume since there is construction work going on still at the house, a door was left open and Alvin found his way into the comforts of the Master Bedroom. Needless to say, we were a little freaked out and later Jason even admitted that he, "thought he would have had to wrestle the animal" as we were running down the stairs to investigate. HAHAHA! My funny Jason! We had quite a laugh after it was all over.

On Saturday we had lunch in Cedar City and rode 4-wheelers that evening. Here are a few pictures from our evening excursion with my brother Matt . . .

. . . and here is Jason giving his "I wrestled a chipmunk last night" face. . . . and Matt is all GQ on the 4-wheeler wearing dad's coat from the 1970's.

During our ride we saw a TON of deer. Sunday was a nice day. I was so happy to be with my mom. You all know how much I love her and how much she means to me. We had cinnamon rolls for breakfast (yum! my favorite!) and later that afternoon we had French Dip Sandwiches. It was nice to sit and watch Gavin's movie with my mom while Jason and Matt were out riding on the 4-wheelers. We had a good talk about what it means to be a mother, and once again I have come to the conclusion I have the best mom. We were meant to be together. Happy Mother's Day Momma!
Sunday when I woke up Jason had a gift for me. Inside a card I found this ring. I love being Gavin's Mommy. . . and that's all I need to say about my Mother's Day.
On the way home from Utah Jason, my mom and I stopped to see Gav. I needed to spend some time with my son on Mother's Day. I know I have talked about this often, but I think that Gavin was so selfless giving us time with him. I don't think he needed to stay here three months with us to fulfill his earthly responsibilities, but I think he chose to stay until we understood what needed to be. I have such a wise son, and I am a lucky momma.

A Privileged Mother

A friend of mine had mothers post on her blog. This is what I wrote:

My experience and privilege of being a mother has been much different than I ever anticipated. The word "mother" has a whole new meaning now - a whole new respect and reverence. Being a mother hasn’t gone the way I planned . . . but, isn’t that normal? I have a sweet baby boy who was with us for three short months on earth, but I feel so honored to be his mother for eternity. Even though motherhood hasn’t gone the way I planned, I feel privileged to be a mother.

A year ago I was a typical girl in the middle of a typical pregnancy with no problems or complications. My perspective of being a mother consisted of being prepared in every way possible. I had read every book, avoided all the things to be avoided and did everything I was told to do in "What to Expect When You Are Expecting." Two months before his due date Gavin’s room was painted, his clothes were washed and folded in the appropriate drawers, his bed was made, and the stroller was assembled. We were ready for our baby boy to come home.

Our sweet Gavin James Bailey was born four weeks early on July 27, 2007 due to a sudden lack of fetal movement. Shortly after Gavin’s birth a Nurse Practitioner came to tell us that Gavin had some odd features that were most likely related to a genetic abnormality or syndrome. I remember watching my husband fall to his knees and cry the most heart wrenching sob. This was not supposed to happen to us! This was NOT what I had signed up for when I decided to be a mother.

But when I saw my tiny little boy for the first time laying in a NICU bed, hooked up to machines, and listening to doctors talk about shortened life expectancy - I realized what it truly meant to be a mother. It was at that exact moment when my perspective on motherhood changed. I knew I was willing to do anything for my son. It didn’t matter how difficult life would be having a son with a trach , feeding tube and severe disabilities. We were willing to give up everything just to have our son. Nothing else mattered except my new little family.

Gavin was only with us for three months before he returned to our Heavenly Father, and that time with him was the most joyful and the most painful three months of my life. Gavin never left the NICU. He never came home to sleep in that bed made for him, ride in that stroller or wear many of those clothes. However, what he taught me was far more valuable than the experiences we may have missed out on having him here with us. He taught me what is means to unconditionally love and cherish the truly important things in life. He taught me how to be more Christlike. He taught me how to have empathy. And most importantly, he taught me how to submit to the will of our Heavenly Father. I often reflect how lucky I am to be Gavin’s mother.

Yes, motherhood is an endearing word. It means love, faith, patience, strength, kindness, sacrifice, happiness, and joy. Gavin taught me more than I ever could have taught him. Gavin has made me a happy momma and redefined my life.

Today's Quote

"Your Heavenly Father loves each of you and has sent you to earth with a purpose. He has revealed a plan of happiness that, if followed, will ultimately bring you home to His presence, having triumphed over the trials and challenges of this world."

(John B. Dickson, "Commitment to the Lord," Ensign, May 2007, 14)

My Conversation With "R"

Yesterday I was at work when my cell phone rang. This was the conversation that followed:

Me: Hello?

R (a sweet five year old girl from church) : Hi! This is "R"!

Me: Hi "R" how are you?

R: What time are you going to be home tonight?

Me: About 7:00.

R (whispering to her mom): She'll be home at 7:00.

Me: Is that okay?

R: Yes, we want to bring you something.

Me: That's so nice "R"! Thank you! I'll see you tonight!

R: Okay. Bye. Oh, and I hope you have another baby really really soon!

"R's" last sentence really made me smile. Children are so sweet, and so are their moms who can see when I have a bad day. Last night "R's" mom brought this basket to us. She said that every month on Gavin's birthday they would buy something for us. There were books, candles, music and so many other sweet gifts. "R" said that the candy was from her, because candy makes you feel better. I was so overwhelmed as I opened the gifts. This is the true meaning of service. They had been collecting things over the past nine months, and when I had a difficult day, they were there with smiles. So, thank you so much for being so thoughtful. Your example of friendship and service is a blessing in our lives.

Poor, Poor Rosalie

Some days are just tough. That's the frustrating aspect of grief. It's like climbing a mountain in the rain. Climbing the mountain of life is difficult even when the sun is shining and the sky is blue; but when you add the rain, it creates a setting for falls, slips and slides. I feel like I am climbing this mountain with overcast skies now. They days are still a little dark, but it is not like the monsoon when I first started this ascent to wherever this mountain trail leads me. Now, I have days where the sun peeks through the clouds for a bit, or days where there is just a trace of rain. Pretty good for the most part, right? As soon as I get used to the overcast skies and the steep slopes of the mountain, the skies darkend and the rain will pour. That's when I fall. Some days I can pick myself back up and keep going, or at least stand until my feet decide it's okay to move again. Other days, when the rain beats down, I slip and just can't get back up right away. The result - I end up laying there useless, helpless, exhausted and heart broken. Well, that was my day yesterday . . . a fall to useless-ness. I just missed my Baby Gavin. I hurt so much.

So, who, you may ask, is Rosalie? I need to change to topic for a moment here now. Back in seventh grade I was selected to be in a health research study to follow teenagers through their adolescent and adult life. The University of North Carolina conducts these surveys and a representative will come to my house once every three or four years to continue the research questionnaire. They ask questions about physical health, mental health, marriage, children, drug use, etc. Like I said before, poor, poor Rosalie. She was the interviewer yesterday - on my rainy day.

Here's an example of our dialogue:

R - How many pregnancies have you had?
Me - Two
R- How many living children do you have from those pregnancies?
Me - None
R- Were they abortions by choice?
Me - (disgusted) NO
R - How many were live births?
Me - One
R - Did the live birth ever come home from the hospital?
Me - No
R - What was your live birth's name?
Me - Gavin - wanna see a picture of him? (and then I break in to hysterical sobs)

So, yes. Poor, poor Rosalie. All she was doing was her job - on my bad day. As she walked out of my house (glad to leave I am sure) she said, "It will get better." Bet I was the talk at her dinner table last night!

Happy Birthday Roger!

Today is my wonderful father-in-law's birthday. Happy Birthday! We hope you are able to do something fun today. I am so thankful for Roger and his influence in our lives. He has been such an amazing example for Jason and I to follow. He is so rational, reasonable and thoughtful. One of the things I will always remember was how he listened to me when we were at PCMC with Gavin. Many times after "rounds" with the doctors I would call him to give him the updated information. I would always ask if he had a free minute to talk. His reply every time was, "I have as much time as you need, Lindsay." He was so patient, kind and supportive through this past year and our extreme ups and downs. I truly appreciate his kind ways, strong testimony and the role model he is for our family. We love you Grandpa Bailey! Have a good birthday!

My Little (Or Not So Little) Brother's Junior Prom

I just can't believe it! My baby brother Matt went to Prom last night. I still remember when he was a baby. . . here is a picture of the two of us. And yes, you can laugh at my glasses. What can I say? I was a 10 year old girl living in the midst of the nineties!

It was fun to watch Matt get dressed up in his tux and act like it was no big deal, and it was hilarious to listen to all of us "adults" give him dating advice. My sister even came home from college for Mom's birthday and Matt's prom. We had such a fun time together this weekend. Here are a few more pictures from Matt's prom night. Sorry the quality is so bad - I had to scan them in.

My sister Becca, Matt and Me . . . with Jason in the background.

Lauren, James, Matt, Jason, Me and Becca

Happy Birthday Momma!

This picture was taken in 1984 - me and mom dressed up for Halloween

Today is my mother's birthday. I won't say what number . . . UMMMMM 50! (sorry mom - please forgive me.) I want her to know how much I love her. Over the years my mom has truly become my best friend. She has been my rock through so many difficult times and a perfect example of what it means to selflessly serve others. I have watched her stay home and raise four children giving up some of her own dreams on our behalf. She is an amazing mother, and I just hope I can be a mom like her someday. I know I have talked about this many times before, but she never left my side during our time with Gavin. She was with me at every hospital visit and moved with me to Salt Lake when Gavin was transferred to PCMC. I have watched her give of everything she has for her family and I love the person my mother is. She is funny (even though we sometimes tell her she isn't), she is kind, she is always willing to help others and she can do just about anything she is asked to do (including towing cars - right mom?!). I love you momma! I hope you have a great birthday!

My New Best Friend For The Day

I'd like you to meet my new best friend for the day . . . Mr. Vick. He is my saving grace today. I'm pretty sure Jason thinks I am addicted. Today at lunch I told him this was a better addiciton than my desired addiction of choice for the day. heh heh heh

Here's how my day has gone today:

wake up . . . I feel gross (is it allergies or a cold . . . hmmmm?)

take a shower . . . I feel a little bit better

I drive to work . . . feeling pretty good

get to work . . . a little sniff, sneeze, and blowing my nose

more sniffing, sneezing and blowing my nose

and even more sniffing, sneezing and blowing my nose

UGH! I HATE being sick! The rough thing is that my doctor won't let me take ANY meds. No allergy meds, tylenol, etc just incase I MAY be pregnant. We want to be able to rule out all potential complications even before I am pregnant. But let me tell you the irony of this situation. If I take something, then I will end up being pregnant and then I will worry about what those meds will do to my baby for the next nine months. If I don't take something, I won't end up pregnant and then I will kick myself for not making myself more comfortable. Any suggestions? Now I better go blow my nose . . .

The Pop Top Collection Continues

I can't believe the amazing "pop top" collection results! We are still collecting them, but I just wanted to post a picture of a few of the bags we are receiving from family and friends who are helping us support the Ronald McDonald House. I am sure that many of you know that my mom and I stayed at the Ronald McDonald House in Salt Lake City, UT while Gavin was being treated at Primary Children's Medical Center. However, I just wanted to reemphasize how amazing the Ronald McDonald House Organization is for families who have ill children. When we were trying to figure out the whole situation with transferring Gavin to PCMC we had a few obstacles in our way. Aside from the medical bills, we also had to think about finding a place to stay for an unknown amount of time. We checked into a few hotels around the hospital, but they would charge us about $1,000.00 a week to stay there. It just seemed like too much money when we didn't know how long we would be in SLC. Our amazing social worker here in Vegas at Valley Hospital called and checked into the Ronald McDonald House by PCMC. Like an answer to prayers, there was a room available for us and they only charged $10.00 a night - plus they tried to refund our money after Gavin passed away. (We didn't let them - they were so awesome to us.) To read more about our stay at the Ronald McDonald House you can link to http://lindsaybailey.blogspot.com/2007/09/our-new-home-away-from-home.html. This home provides parents with a place to go after long and difficult days at the hospital with their children and a place where they can talk to other parents going through similar trials with their children. Never in a million years would I have imagined that I would have need of such an organization. Never in a million years can I ever pay them back for the support, kindness and service that they provided to our little family during a most difficult and trying time. The one thing I feel like I can do is collect pop tops. The Ronald McDonald House collects the pop tops and can use the money at their House. Please, please, please save your pop tops. We have a jar in our kitchen that we drop them in - it's simple. I can't believe how much support we have already received from this effort. I have received bags and bags from family and friends. I would be more than happy to be the "drop off" for you so you don't have to make an extra trip to the House. Thank you for all you guys do! We love you!

Happy Birthday Brent!

Today is my brother-in-law Brent's birthday - and this is my favorite picture of him. I'm so sad the picture is dark. This was taken at California Adventures a few years ago when Jason and I went with Brent's family to Disneyland. It was such a blast! Jason was a little too chicken (heh heh heh) to ride Paradise Pier with me so Brent did. Brent is such a great brother and friend. He has been such a wonderful example as a father and I know that Jason really looks up to him. We love you Brent! Have a great day today!

Baby Momma

Saturday night Jason and I went with some friends to see Baby Momma. It was cute movie with some pretty hilarious scenes. I may be a little biased 'cause I am a Saturday Night Live and 30 Rock fan - but I thought Tina Fey and Amy Poehler were a perfect team. I don't want to spoil the movie too much, but the part where Amy describes what contractions feel like . . . yep, a perfect description. Let's just say there are references to knives. I couldn't stop laughing. I wanted to post the picture where Amy Poehler has the breast pumps over her eyes during a birthing class . . . but I wasn't sure it was entirely g-rated. heh heh heh

Happy Nine Month Birthday Gavy

Happy 9 Month Birthday Buggy!

I can't believe it. Today you would be nine months old! That means you have spent as much time out of my tummy as you spent in my tummy. If you were here and healthy right now, I think you would be crawling around and getting into mischief. That sounds good to me.

Sometimes I think about all of the things we are going to miss out on together. It makes me sad. I won't ever see you kick a soccer ball or lose a front tooth. You won't ever ask me to borrow keys to the car and I won't ever get to watch you fall in love (at least here on earth). I think about all of the things we are going to miss out on and then I remember. . . I remember all of the things we did get to do together, Gav. I have changed your diaper (and a trach!). I have cleaned up your boo-boos and calmed you when you were upset. I have held you and rocked you and I have played with you on the floor. I have kissed you and cuddled you and held your little hand. I have looked into your eyes and heard your thoughts. I have given you a bath and washed your hair. I have prayed and fasted for you. I have been there to witness blessings given to you and I was able to hold you until you took your last breath. I am a lucky momma Gav, because of you. I have felt so much peace because of you and I have felt Heavenly Father's love because of you.

I miss you so much, Bug - but I am grateful for you and Heavenly Father's eternal plan. I am grateful for the tender mercies that Heavenly Father gave us. He blessed our little family with you. I know you didn't have to stay three months, but you did. You gave your mommy and daddy something to remember and good times to reflect on. How grateful I am to have been part of this experience. I think of you everywhere I go. Your daddy says that you are the first thing he thinks of in the morning and the last thing he thinks about at night. We love you Gav. And whatever you are doing, please know that you were and continue to be loved.

Love,
Momma

Be Still

We had a really great talk this past Sunday in Sacrament Meeting - it was on revelation/listening to the spirit. One of the things he spoke about was "being still." This has kinda stuck with me all week (probably because I am not so great at "being still"). I have tried to make an effort to take time to have silence and calm myself. Well . . . NOT an easy thing for me. If you know me I am an anxious-I-need-to-know-everything-kind of person. I need to have plans. I need to make the most of my time. I need to have things in order . . . and then I can have time to "be still." Yeah, well, that's not working so well. I decided last night that I needed some time to "be still." Just before I went to bed last night, I sat alone in my room. Jason was busy studying, and I knew I had a few moments to sit alone and think - think about all of the things in my life. The good and the difficult. I found that with silence and a relaxed mind I felt so much gratitude. I felt grateful for how much I have been blessed - even when I felt like my pains had been unbearable and I realized the miracles in my life, even if they were different than the ones I have initially asked for.

And then I thought about this story . . . Jairus and his daughter. I am sure that many of you know the story. I don't want to get all preachy, but it reminded me of how much I need to be still and depend on the Savior. In this story Jairus has asked Jesus to come heal his (only) daughter who is dying. Jesus agrees and as they try to make their way through the throngs of people Jesus stops to preach and heal others. Jairus is getting frustrated and then turns to the Savior and essentially says, "Why are you stopping? My daughter is dying!" To which a ruler of a synagogue informs him, "She's already dead." I can only imagine Jairus' thoughts, his anxieties and grief. He must have imagined that if they were able to get there quicker the Savior could have healed his daughter before she died. But, the Savior says to Jairus, "Fear not: believe only, and she shall be made whole." The Savior was telling Jairus to be still. He was telling him to not be fearful or anxious. He was telling him to have faith that all would be made right. I just love this picture. I think it tells the story in a single scene. Jairus and his wife are grief stricken - as one would be if they lost a child. Christ then lets them weep before he raises her. In this picture the Savior is standing at the door entrance of their home. To me, His presence in the doorway is symbolic of the fact that He is willing to lift our burdens if we let Him in. If we ask for him. And when we ask for Him, he will still our fears, grief, pain and worry. We just have to be still and let Him in.

This post kinda sounds preachy . . . I know. But I felt like I had to write this one down before I forgot it. :)

A Happy Day

I feel kinda bad for being a little negative lately . . . so I wanted to say that I am having a good day today. The memories are good today. I am a happy momma. Here are some pictures of my cute little bug.

A Book Review

A few weeks ago I picked up a book titled Making Sense of Suffering by Wayne Brickley. I finished reading the book this weekend and while I can't say that I really recommend it, I can say that it had some really good perspective. I didn't necessarily feel overwhelmingly inspired after I read it - in fact, I felt slightly guilty for having some of the feelings I experience on a constant basis. Intellectually I agreed with everything said in the book. Brickley quotes and references the scriptures, prophets and apostles well, but I felt like there was a lack of emotional understanding. Perhaps I want validation. Perhaps I want someone to say, "Go ahead and cry all day today. It's okay to feel like crap for a little bit and be in survival mode for awhile. It's normal." This book gave all the reason why you should be "okay" during a difficult trial, but I feel like it didn't express the fact that we are human. Grief is a process and you have to work through it. Okay-ness just doesn't happen overnight because you have faith. It takes time to learn and understand. I have come to the conclusion that it is NORMAL and OKAY to feel sadness, guilt, grief, bitterness, anger and hurt. It is how we deal with these emotions in the end that really matters. We were sent to this earth to experience all of these earthly emotions. They are what make us grow and develop our character. If we pushed them aside and ignored them we would not be making ourselves better - we wouldn't progress. It is through these trial and obstacles that we experience these emotions and then turn to our Savior for help to overcome them.

Okay, aside from that little rant . . . there was some good perspective in this book. Here are a few quotes that I liked.

"How easy is it to falsey measure our fortunes. When we have more money, health, honor, or pleasure, are we winning? Not necessarily, for our ills and fortunes are tests, not grades."

"As our Father beholds the expanse of agony and sorrow, he focuses on each broken heart personally. He also discerns the best timing for comfort and relief. He arranges to have friends, mortal and heavenly, gathered around each drama of suffering in an attendant drama support."

"Suffering makes our quiet companion more discernible. The veil, especially the part covering the heart is thinner. He consoles, 'Be of good cheer,' and he whispers, 'I will lead you along.' "

Life is Good

Today I went to the funeral of my friend I recently spoke about who had been in the Trauma Intensive Care Unit a few weeks ago from a minor head injury. Funerals are a completely different occasion for me now. I feel like I understand death and Plan of Salvation more than I ever have before. This was the first funeral I have attended since Gavin's and I felt such a range of emotions. I can relate to the intense sadness and grief that his parents and family are feeling, however, I think I have a more full and purposeful understanding of death than I did ten months ago. The service was beautiful and the congregation expanded past the chapel and to the back of the gym. He was so loved. I am sure it made his parents feel so good to know that people loved their son so much. I know how much it meant to me to know that people loved Gavin enough to attend his funeral.

His father was one of the speakers and at the end of his talk he said, "Life is good." I have reflected on that all day. Can I say life is good? This man just stood in front of 500 people and essentially said, "Today I will bury my son - I will not see him for the rest of my mortal existence and life is good." That sentence has played over and over in my mind. Life is good. Life is good. Is my life good? I have buried my son as well. I have empty arms. And most of all I have a broken heart. Is my life good? This caused some serious refection for me. And I have decided that . . . yes . . . LIFE IS GOOD. A good life doesn't mean we are free from pain or a broken heart. It means that we have hope - and I have hope. I think that is one of the only things that keeps me going day after day. I may not have a perfect knowledge of the plan for our little family, but I do have hope and faith that this life is not the end. My son lives too - he is a faithful, valiant son of our Heavenly Father and he is doing much to bring the gospel to those who haven't had an opportunity to hear about it. I am so grateful this father has enough faith to stand and say, "Life is good."

I left the funeral feeling a renewed sense of hope and gratitude for my knowledge of the Plan of Salvation. I don't think I could have this very specific testimony without the experience that we have had with Gavin. Many times I have to remind myself that something "good" has to come from this experience. Gavin was sent here for many reasons, but I truly feel like one main reason he came here was to teach me how to return to my Heavenly Father and strengthen my testimony in His gospel. I was so grateful to feel that reassurance of my testimony during this funeral. Knowledge does not mean that the hurt disappears . . . it only means that we understand that the hurt won't last forever and that there is more to this existence than this mortal life.

A Bereaved Parent's Wish List

As Jason and I have gone through the experience of having and losing Gavin we have come to understand that there are so many parents who have experienced these same trials and emotions. More than I EVER imagined. I have been emailing a bereavement counselor/therapist from PCMC and she has been sending me some information on grieving and loss. As I was reading this information last night I thought it may be helpful for parents who have lost a child or who are grieving for the child they anticipated. We feel so fortunate to have been surrounded by supportive friends and family. I wish I could list the number of times we have felt the love and prayers from the kind people who have supported us and Gavin. I am so appreciative for all of the kindness we receive and I am worried at times I may come across as cranky or irritable. I am sorry if I have ever interacted with you this way. I acknowledge how much support we have received and we truly appreciate it. So . . . for any parent/grandparent/friend/brother/sister who has lost a little one . . . I hope this helps you the way it helped us. Maybe we aren't as crazy as we think we are. :)

A Bereaved Parent's Wish List

1. I wish my child hadn’t died. I wish I had him back.

2. I wish you wouldn’t be afraid to speak my child’s name. My child lived and was very important to me. I need to hear that he was important to you also.

3. If I cry and get emotional when you talk about my child, I wish you knew it isn’t because you have hurt me. My child’s death is the cause of my tears. You have talked about my child, and you have allowed me to share my grief. I thank you for both.

4. I wish you wouldn’t “kill” me again by removing her pictures, artwork, or other remembrances from your home.

5. Being a bereaved parent is not contagious, so I wish you wouldn’t shy away from me. I need you now more than ever.

6. I need diversions, so I do want to hear about you; but I also want you to hear about me. I might be sad and I might cry, but I wish you would let me talk about my child, my favorite topic of the day.

7. I know that you think of and pray for me often. I also know that my child’s death pains you too. I wish you would let me know those things.

8. I wish you wouldn’t expect my grief to be over in six months. These first months are traumatic for me, but I wish you could understand that my grief will never be over. I will live with the death of my child until the day I die.

9. I am working very hard on my recovery, but I wish you could understand that I will never fully recover. I will always miss my child and I will always grieve that he is dead.

10. I wish you wouldn’t expect me “not to think about it” or to “be happy”. Neither will happen for a very long time, so don’t frustrate yourself.

11. I don’t want to have a “pity party”, but I do wish you would let me grieve. I must hurt before I can heal.

12. I wish you understood how my life has shattered. I know it is miserable for you to be around me when I’m feeling miserable. Please be patient with me.

13. When I say, “I’m doing okay”, I wish you could understand that I don’t “feel” okay and that I struggle daily.

14. I wish you knew that all of the grief reactions I’m having are very normal. Depression, anger, frustration, hopelessness, and overwhelming sadness are all to be expected. So, please excuse me when I’m quiet and withdrawn or irritable and cranky.

15. Your advice to “take one day at a time” is excellent advice. However, a day is too much and too fast for me right now. I wish you could understand that I’m doing good to handle an hour at a time.

16. Please excuse me if I seem rude, certainly it is not my intent. Sometimes the world around me goes too fast and I need to get off. When I walk away, I wish you would let me find a quiet place to spend time alone.

17. I wish you understood that grief changes people. When my child died, a big part of me died with him. I am not the same person I was before my child died, and I will never be that person again.

18. I wish very much that you could understand my loss and my grief, my silence and my tears, my void and my pain. BUT I pray that you will never understand.

Compiled by Diane Collins, The Compassionate Friends, Bay Area

A New Favorite Quote

True, enduring happiness, with the accompanying strength, courage and capacity to overcome the greatest difficulties, will come as you center your life in Jesus Christ. Obedience to His teachings provides a secure ascent in the journey of life. That takes effort. While there is no guarantee of overnight results, there is the assurance that, in the Lord's time, solutions will come, peace will prevail, and happiness will be yours.

- Richard G. Scott

Dear Gavin

My Gavin James,

I have been thinking about you all day today. I just felt like I needed to send you another letter. This morning when I drove by to see you I felt like we had a little conversation. Just the two of us. Maybe others will think I am crazy, but I am pretty sure you told me to have a good day. I told you I love you.

It's been windy outside lately Gav . . . and that's hard for me. I know that your spirit is in a safe place but I dream about your little (almost) thirteen pound body being outside. I know you are safe but a momma loves the body of her baby whether his spirit is there or not. Maybe that's hard to understand Gav, but I loved every moment I was able to touch you. I want you to know there was NEVER a time where we didn't want to hold you. I know you spent so much of your life in the crib. That is not what I wanted for my son. You were so fragile at times and we couldn't disturb you. But we always connected Gav. I remember watching your breath numbers on the ventilator increase when your dad I and would talk to you. They say you couldn't hear - that your ears never formed right inside and that you didn't have the cranial nerves to send the messages to your brain - but we connected anyway. Didn't we? It felt good when the three of us could be together. Like life was complete and simple - even in the midst of the chaos of the NICU.

I have to tell you about an experience I had on Sunday. I was in the primary room and I was holding a little boy that was born a few weeks after you. I had him on my lap and he was looking at me and laughing. And for a brief moment Gav, I felt the most intense joy. Like Heavenly Father was telling me I would have this experience with you. For that moment I felt like the heavy weight of grief was lifted from my shoulders. I just have to remember that this life is a brief moment sandwiched between two eternities. We will have our time together Gavin. It will be the three of us again - just like it was at the beginning.

Keep working hard Gavin. I know you must have much to do. Please know that your mommy and daddy love you. You are the best thing that has ever happened to us. I will write again soon.

Love,

Your Momma

When Time Stands Still

There are moments in life where time stands still. That is . . . time stands still for you. It stops and you are frozen in a moment. In a day. In three months. The six months after. . . and still counting . . . and will be counting forever. Meanwhile, the rest of life is spinning like a revolving door around you. You float as if invisible through the glass. Rotation after rotation. Over and over the door spins but you can't budge. People/Events/Circumstances run in loud circles around you. But your life has stopped. You are still in the panic and chaos that is life but your feet are cemented in a path that will never change. Forcing you in a direction you never knew of. Everything you know - everything you have waited for is frozen. Stolen. Or was it given? Ugh! All you know is that you must start again. Slowly you step forward hoping to not get swept up in the revolving rush of life. You know what life is about now. You know what is important. It's still hard making that transition. No longer can you walk in the innocence and naivety of a revolving life. Your life must have a purpose now. You must step out of the revolving door that offers a direction to nowhere and begin a new independent path with purpose. You know he doesn't want you to stand invisible - feet cemented in the ground. He wants you to walk that path with happiness and joy - to remember that this is a short time. And you hear him say, "Momma, I really not that far away."

Happy Birthday Cindee!

Have you ever seen a happier grandma? I thought I would post a few of my favorite pictures of Jason's mom since it's her birthday today. HAPPY BIRTHDAY CINDEE! These pictures were taken the first time she was able to hold Gavin and I just love the expression of pure joy on her face. That is true grandma love, isn't it?! Cindee was one of the bright spots in the hard days that followed Gavin's birth. She has such optimism and hope. It was refreshing to have that personality around when you felt like your world was tumbling down around you. I just love how much she loves her family. Thank you Cindee for being a great mother! Have a happy birthday!

Apple Dumpling Recipie

I had a few people ask about the Apple Dumplings I made at Easter. Here is the recipie . . .

Apple Dumplings

2 Granny Smith apples

2 cans crescent rolls

2 sticks butter

1 1/2 cups sugar

1 teaspoons vanilla

cinnamon

1 small can Mountain Dew

Peel and core apples. Cut apples into 8 slices each. Roll each apple slice in a crescent roll. Place in a 9 x 13 buttered pan. Melt butter, then add sugar and barely stir. Add vanilla, stir, and pour over apples. Pour Mountain Dew around the edges of the pan. Sprinkle with cinnamon and bake at 350 degrees for 40 minutes. Serve with ice cream, and spoon some of the sweet sauces from the pan over the top.
Then go to confession. Quickly.

here is the site for the recipie http://thepioneerwoman.com/cooking/2008/02/apple_dumplings/

HIP HIP HORRAY!

People! It's the return of The Office tonight! WOO HOO! I have been having serious network television comedy withdrawals. I need it . . . yep, I NEED The Office. Nothin' like a scene of Dwight on an exercise ball at his desk or Meredith asking Jim, "Wanna sign my cast?" (Which by the way, is a pelvic cast.) I am so looking forward to tonight's episode . . . has anyone else seen the teaser where Dwight cries because he hasn't been invited to Michael's house party?! HILARIOUS!

Beautiful Girl

This entry is dedicated to my beautiful wife, Lindsay. I want everyone to know how incredible she is. Reading through this blog and all of her entries, I’m sure you are all very aware of how special she is. In fact, this entry is long overdue. Her strength, kindness and beauty are amazing. Lindsay is the kind of person that you ALWAYS want to be around. This is something that I’ve constantly felt – I always want to be with her. She makes you better. She makes you happy. And she makes you laugh.

My wife was the perfect mother for our son, Gavin. I’m sure many of you have read his story and know just how special he is. It takes a special mother to have a special son. Her patience, love and understanding during the three, sweet months we had with Gavin will forever be remembered. Her faith, perseverance and hope since then will not be forgotten.

As her husband, I want her to know how much I love her and how much in love I am with her.

Lindsay loves, laughs and lives to the fullest. I have never met anyone with so much genuine love. Her passion for life is amazing and even though she has experienced extreme sadness and pain, she cherishes each day. She makes me a better man.

I love you, baby.

Five.

Jason

Just Incase He Can Hear Me . . .

Sometimes I wish I could talk to Gavin. I wish I could tell him everything I feel and how much I love him. If he can hear me I think my letter to him would go something like this. . .

Dear Gavin,
My sweet Baby Gavin. I am so glad we picked this name for you. Your first name had been your daddy's favorite name for a long time - even before we knew you were a boy. And your middle name, James . . . that is a strong and faithful name in your momma's family. It fits you well, doesn't it?

Gavin, I don't know if you know how much we wanted you. How anxious we were for you. You should have seen the look on your daddy's face when I told him I was pregnant. I remember crying on my knees to our Heavenly Father asking Him to please let me keep you. I wanted you so much. That night we thanked Heavenly Father for you and our new little family. This was long before I really knew you Gavin. Oh, how you would change my life.

July 27, 2007 - that's your birthday Bug! It was a day filled with a plethora of emotions. I remember the first time I saw you. You were silent, Buggy. It scared me. The nurses told me you were okay, but I knew it wasn't true. Babies cry and move when they are born and you did neither. They took you away Gav. Your daddy tried to follow you but had to come back to momma's room. Then the hardest part came. A very kind nurse came to tell us that you weren't healthy. "We don't really know what is wrong," she said. Your daddy dropped to his knees and sobbed. And Gavy, even though I was heartbroken I felt peace. I knew that we would do whatever you needed.

The first time I saw you laying in your NICU bed it scared me. Your small 5 pound body was hooked up to wires and monitors. You had an IV in your sweet little forehead which made your eyes swell up. You still didn't cry, my baby. You laid so straight in you NICU bed, but gradually you started kicking your legs. Your daddy gave you a priesthood blessing that night. Do you remember that Gavy? He blessed you with a strong body, mind and spirit. We had hope Gavin. We were praying for our miracle.

Most of all Gavin, I want you to know that we received our miracle. It is you. We found out after you left us that you shouldn't have lived those three months. You are such a good son. I know you were tired. I still remember looking into your eyes late in August and hearing the words, "Momma, I am so tired." We had faith to heal you son, but that was not your plan. You have taught us and given us a more purposeful existence. You have taught me what pure love feels like. I miss you Gav. It's hurts to not touch you or hold you. I miss the peace you radiated from your little crib. I miss you holding on to my finger and on occasion staring into my eyes telling me, "It won't be as bad as you think it will be momma." I drive by to see you every single day to tell you I love you - I have not missed a day. Do you ever hear me? But Gavin, for as much as I hurt, I have peace because sometimes I can hear you. I can hear you whisper, "Momma, I am not that far away."

I will write again soon Bug. Please know that I love you.

Love,
Your Momma

Our Weekend Retreat

This weekend Jason and I were able to escape to my parents' cabin near Brianhead Ski Resort in Southern Utah. We wanted some much needed alone time away from work, school and other obligations we seem to find ourselves in on a constant basis. A few months ago I purchased Colbie Callait concert tickets for her performance at Tuachan Amphitheater for Friday night so we decided to make a weekend of it and stay at the cabin to watch General Conference. Friday afternoon we drove to St. George, UT and had dinner at the Pizza Factory before we went to the concert. Colbie has such an amazing voice - just like how she sounds on the CD. I am always so envious of people with that talent.

Saturday we woke up late and watched the morning session of conference and then went to get lunch at one of our favorite restaurants in Cedar City . . . The Pastry Pub. If you are ever going through Cedar City we highly recommend their salads and sandwiches. After lunch we walked around Southern Utah University's campus remembering "the good ol' days" and laughing about all the fun times we had at school. We then drove back to the cabin and relaxed while we watched the afternoon conference session. After dinner we watched about 10 episodes and 30 Rock and drank soda and ate candy until we wanted to throw up.

Sunday we watched more General Conference, sat around in our pajamas and ate more candy and soda until we were both laying on the floor laughing and once again feeling sick. I always love hearing from our Prophet and General Authorities on Conference weekend. It is such a spiritual boost and renews my goals to be a better person.

The weekend was so much fun and it was so nice to be away from real life. Here are a few pictures from the weekend:

This is the outside view of the cabin and the picture below is the family room where we sat around in our pjs and ate candy until we puked.My cute Jason always knows how to make me laugh.
We did cook dinner Saturday night . . . I guess that was one time we didn't eat candy for a meal. :)

An Anonymous Gift

This past Friday Jason and I received an anonymous phone call telling us that there was a package left at our front door. We were actually out of town this weekend so we had our friends pick it up for us. Today we went to get the package and found this drawing of Gavin. I was completely speechless. Jason's first words were, "That gave me the chills." It is a BEAUTIFUL drawing and I can't begin to explain how much it means that someone is still thinking about Gavin. We don't know who drew it . . . but the time and effort it must have taken means so much to us. Seeing his perfect face without a feeding tube or without the few physical deformities he had just makes us imagine what it will be like the next time we see him. There is so much feeling in his eyes, don't you think? So much thought must have gone in to this anonymous gift . . . and whoever it is . . . we thank you from the bottom of our hearts.

Looking Forward to This Weekend

Over the past few years I really have grown to love conference weekend and look forward to it. Sure, I still love sitting around in my pajamas all day and eating candy while we watch conference at home . . . but now it's about more than that. I am so grateful that we have prophets on this earth to lead and guide us. I feel that I now truly understand why it is so vital to have this gospel in our lives. It brings hope and reassurance that God does hear and understand us. Our Savior has a perfect knowledge of us and he speaks to us through His prophet and his apostles.

For more information about The Church of Jesus Christ of Latter Day Saints please visit:

http://www.mormon.org/

Who Can Resist These Big Blue (and Crossed) Eyes?!

I Know How You Feel (Kinda)

Last night my friend and I went to visit another friend of ours at the UMC Trauma Center after he had suffered a very serious head injury a few days prior. Our 26 year old friend had very extensive brain swelling and has had a few brain bleeds as well. The prognosis was not looking optimal when my friend convinced me that we needed to go show our support for him and his family. I have to admit, I was apprehensive about walking in to another hospital to see someone I care about lying in a bed suffering. We knew he was in a coma and was on a ventilator and I just didn't know if I could see that again.

As we drove to the hospital I kept asking the question "WHY?" We all know how many times I have asked that question, and I felt frustrated that Heavenly Father would let this wonderful guy have such a trial. And more than that . . . I felt I could relate to the sadness his parents were experiencing. I know what it feels like to be the parent hanging on to every single word a doctor says and not knowing the end outcome of your child. I know what it feels like to know that there really isn't anything you can do to help your son and that his life depends on the Lord's will.

I started to feel more of my self pity and despair as we approached the hospital and the area of town that I now know like the back of my hand. Then the thought came to me, "Stop thinking about yourself and help someone else." So, I did. I spoke with his mother for awhile and I could relate somewhat to the pain and anguish she was feeling. I felt I truly could empathize with her on some level. I have been that mom before. I have been the mom sitting at the hospital waiting for doctors, tests, surgeries and praying for any positive improvements of my son.

As I left the hospital and went home I thought of nothing but my friend and his family. Later that night when I crawled into bed I realized I hadn't felt self-pity since I had arrived at the hospital. Stepping outside of my own hurt to support someone else truly helped me. Sometimes I feel like I am so involved in myself and my situation that I ignore so much around me. Last night helped me see the bigger picture. We are here to help others and carry each others burdens. I know I may not have done much for this family . . . but they really have no idea how much they helped me last night.

WARNING! Today I feel . . .

Every now and then I read something that inspires me - something that speaks my truth through the words of another person . . . another mother. I read a blog of a woman who lost her son at six weeks. She doesn't know me and I don't know her - but she inspires me to be honest and truthful to myself and my feelings. Her words are raw and simple. The truth of that bare emotion strikes so close to my heart that I feel as if we have been thinking the same thing from the minute our baby boys were born.

Here is an excerpt from one of her recent posts . . .

Before all this, I’d shrink away from trauma like cooties. Oh isn’t that terrible and get me outta here was pretty much my instinctual response to anyone pinned to the concrete under an anvil. Not that I didn’t care, or wouldn’t listen, or wasn’t moved. I was simply clueless and oblivious, and preferred to stay that way.

To a point, we all saunter through life like doo de doo and lah di dah until an explosion blows the blinders off our eyes and we realize that all along, we’ve been sauntering along the edge of a precipice.

Then, we can hardly move one foot in front of the other. We whimper with backs pressed against the wall, the one misstep that will send us to our doom playing over and over again in our heads. From time to time the pathway narrows so that our toes hang off the edge, and we are paralyzed.

For some of us, that explosion is the slipping of an embryo, the loss not of a formed being but the potential of one. We can now see the precipice and we tremble and wail for intervention, for our blinders.

For others, that explosion is the NICU. Or the death of a six-week-old son or two-year-old daughter or fourteen-year-old son or thirty-five year-old wife, or any other number of unfair events that give us sudden vertigo.

Despair comes in two flavours, did you know? There’s the ever-popular Rage, the anger that makes you want to rip the heads off anyone and everyone you meet. Then there’s Self-Pity, the woe-is-me that’s even more crippling than the rage.

Standing there peering through the window of someone else’s trauma, you whine friggin’ lightweight. This person thinks they’ve got it bad, but THEY DON’T KNOW BAD. They haven’t had a baby die.

But here’s what you don’t know. Someone else is peering through your window, whining friggin’ lightweight. This person thinks they’ve got it bad, but THEY DON’T KNOW BAD. They haven’t - insert imperssively horrific event here-.

The thing I love about her honesty in this post is that she openly admits we all have difficult burdens to carry. And we can't compare them. I recognized that every single person will feel disappointment, sadness, loneliness and grief at one point or another in their life. I hope that I will be able to "mourn with those that mourn" more effectively now. . . Gavin has changed so much about me. Knowledge of eternity brings more comfort that I think I am able to comprehend - but living on earth without him is excruciating. I am grateful for my blessings. I am grateful for my eternal family. However, a mother and father still suffer when their 94 day old son dies. I know this is part of the plan, but it hurts and I know that others hurt too because of one reason or another. I read a quote the other day that said, "If life hurts, then you are growing." I don't think it means we have to be in agony all of the time - I do think that we are intended to have joy, but agony is an earthly emotion that we have to know. Every single person will feel grief for on reason or another - and then they will grow. I know I never was promised a perfect life, but I was promised that my trials would be met with blessings. I do believe there will be an end to sorrow and there will be a time where we will all feel nothing but peace and joy.
So, I guess what I am trying to say is that this is my truth for the day. Brutally honest as it may be . . . it's the way I feel today.

My New Hobby

I know I have already posted a few of my Photoshop experiments, but I just thought I'd add a few more. I have found that it is best if I keep busy and this is one of the ways I am learning to keep myself sane. (Can you believe there was actually a time where I thought I would never have a free minute again? . . . yeah, I still would rather be doing that.) This has been a great way for me to "not think" and spend some time with Gavy's pictures. My cute little bug . . .

Two Little Words . . .

I have to vent about something. Something that I can say I am truly grateful for; but in the same breath I can say this drives me crazy as well. Health Insurance. Who knew these two little words could provoke such an emotional response in an individual?!

Working through the health insurance information for Gavin is well . . . a nightmare. We actually are VERY fortunate and have coverage by two insurance companies, but keeping things in order is overwhelming. My little multi-million dollar baby has left quite a mark in our family filing cabinet! I can't even begin to explain the paperwork we are still receiving for his medical treatment. My expando-folder can't expand any more!

The frustrating thing is that it's hard to move on financially (emotionally is a whole other topic) when you are waiting for the other shoe to drop. I have called both insurance companies multiple times asking about claims processed, claims denied and claims pending. I can't get a clear answer on what will or won't be covered. I feel like there will never be an end! It's hard to sit back and wait for the bills to come in. Will we have bills? Will we get lucky and have his costs covered mainly by insurance? Or (as I often worry) in one, two or three years will the final bills come rolling in? UGH . . . it's just the anxious part of me that wants to know the end of the insurance story. I know there are many of you who have had to deal with this as well. Any suggestions?

An Angel is Hard to Find

I have been thinking lately about all of the people who have lost children and have had struggles with their children's health. I feel so ashamed that it has taken this kind of personal experience for me to truly empathize with people who have to carry these very difficult burdens. This poem was given to us by one of the kind receptionists at the mortuary here in Las Vegas when we went to dress Gavin. It's simple and sweet . . . and for those of you that hurt, I hope you can find a smile today. We are thinking about you.

When God calls little children

to dwell with him above

we mortals always question

the wisdom of His love.

For no heartache can compare with

the death of one small child.

Who does so much to make this world

seem wonderful and mild.

Perhaps God tires

always calling the aged to his fold

and He picks but a few

to make the land of heaven

more beautiful to view.

Believing this is difficult

still somehow we must try.

The saddest word that mankind knows

will always be "good-bye."

And so when little ones depart,

we who are left behind,

must realize how much God loves children

for Angels are hard to find.

Sometimes I Wonder . . .

. . . what would Gavin be like today? Today he would have been eight months old! So many questions run through my mind on birthdays and anniversaries that remind me of him. Eight months old. What does an eight month old do? If he were here and healthy, would he smile? Would he laugh, cry and make funny faces? Would he sit up or roll over to his tummy? Would his bright blue eyes shine the way they used to? Would his hair have stayed so blonde? What would we like to play with while daddy was at work? Would we go on walks around the park when daddy came home? Would we laugh and roll around on the ground and play with him? Would we read him books and sing to him at night? Would we bring him to our bed on Saturday mornings to cuddle and love him?

I hope this isn't too negative, but we wonder these things because we sometimes feel a little cheated of earthly-parent experiences. Even with feeling cheated, we do know that we truly have some amazing blessings as well. Blessings that we can't even comprehend at this point in our lives. And because I am starting to understand the bigger picture I wonder other things too . . .

. . . what is Gavin doing today? Is he running and playing with other little boys and girls in heaven? Is he showing and teaching people about the truly important things in life? Is he helping fulfill a greater cause than we can understand here? Is he watching over us? Does he know that we are so grateful we had three months with him? Does he know that his sweet pictures still make us laugh? Does he know we love him and miss him? Is he counting the days to be together again like I am?

Just a few things I wonder about on days like today . . .

March Madness

So, this past weekend started the Madness that is March in our home. I have to be honest, I usually look forward to and even participate in the madness. Each year we fill out brackets with both families and it's fun to compete and compare picks. However, after eight hours of non-stop basketball I need to get out and do something else. I just don't know how these boys don't get tired of watching game after game! I am usually a fairly good wife about the basketball madness and last year I even encouraged a weekend in front of the tv when I recommended we stay in and order pizza. That's what a good wife does, right? This year I haven't been quite as supportive (so sorry Jason) but I intend to change. So, Jason, I promise this upcoming weekend will be spent in front of the tv watching games and eating pizza!

Easter 2008

HAPPY EASTER! This weekend Jason's parents were in town and we had a wonderful Easter morning with them before they headed back to Salt Lake City. After church, Jason and I met up with my parents, siblings and grandparents at the cemetary to spend some time with Gavin before our Easter dinner at mom and dad's house. Easter has a more personal meaning to us this year. Of course, I have always believed in the resurrection . . . but I now find myself looking forward to that day on a more personal level when Jason, Gavin and I will be together again. I thought it would be a difficult holiday for us, but it actually turned out to be a sweet and uplifting day. I loved being in primary and hearing the children talk about Easter and what it really means to them.

I just wanted to post a few pictures from today!

These are apple dumplings - and they are SO good! This was the first time I made them, but they were perfect for Easter breakfast with Jason's parents.

Jason and I took an Easter basket over to Gavin in the morning.

Jason's parents brought Gavin a cute little bunny for Easter.

My family had a nice time visiting with each other and spending a little time with Gavy.

Uncle James, Uncle Matt and Daddy visting with Gavin.

An Answer to Prayers and A Window to My Fears

Perhaps you may think the title of this post is a contradiction or paradox. But this is the feeling in the Bailey house this week. We actually have some great news. This week I spoke with the geneticist again and my OB and they have all officially cleared us to have future children. I asked the geneticist the question, "Are you SURE?" about a million times and each time she said, "Lindsay, there is no reason to not get pregnant." Of course, as we have been told multiple times, there are no absolute guarantees in genetics but they all feel very confident that this was a one time situation. With the CHG array test that returned negative, they are pretty sure that Gavin's mutation must have been a single isolated occurrence that is too obscure to be detected. It was very exciting conversation and it is truly an answer to many, many prayers. This past week as Jason and I discussed the final word, I felt so much joy. Our future children will never replace Gavin - he will always have his momma wrapped around his finger. He will stay one of my constants throughout the rest of my earthly existence and will keep an extra special place in my heart. However, this being said, the thought of having another baby brings so much joy and so much worry. I feel like I can maybe, just maybe feel real joy again. Maybe I will get to be a mom like all of the other moms I see. It has been such an answer to prayers and we are so thrilled to have this news so quickly. We had been anticipating months if not a year of testing and wondering. We are so blessed to have had this process go swiftly.

Now to the second part of the title . . . my fears. While we are so happy to receive this news it does bring about a great amount of worry and anxiety. Since we don't know what Gavin's syndrome was, the doctors can't give us a number - meaning they can't say "you have a 1 in 100,000 chance" or "you have a 1 in 2 chance." This means our decision is going to be made solely on faith and hope. With all the excitement of thinking about a new baby, I also thought about how mentally exhausting the pregnancy will be. No test would have picked up Gavin's mutation. There was NOTHING we could have done to prevent or predict Gavin's problem. We didn't know until he was born that he had problems. So, in turn, we will worry until the day a baby is born. There will not be a moment that the thought won't be in our minds about the chance that this child may have issues comparable to Gavin. I worry I won't be able to enjoy this pregnancy the way I enjoyed Gavin's pregnancy. Things are just different now.

We are feeling such a mix of emotions. We are happy, excited, nervous and terrified. If we are able to get pregnant again it will once again be a roller coaster.

Moments That Take Our Breath Away

This is most most recent creation using Photoshop